About Me~, chronic illness, inspirational, Uncategorized, Writing

Win, Lose, or Draw…..

Happiest of weekends to you EveryBUDDY! I hope today finds you having a blessed one. It is cloudy , grey and gloomy here today in my neck of the woods, so I reckon it’s going to be a jammies and “bum around” day , for me. Whatever your plans are, I hope you have plenty of spoons to get all you need accomplished.

Anywho, we’ve just got three letters left in our series, and then I’ll be on to write about something else.  🙂 I  am interested in hearing your points of view, and if you have something you’d like to know, or you’d like for me to cover here. I’ll take all comments into consideration.  Without further ado, here is the list so far, and then today’s thoughts.

A: Acknowledge and Accept

B: Breathe.

C. Find  Comfort

D. Get a Doctor or team of them you can trust

E. Exercise ~ even if it’s just a scoonch ( Hey ! Scoonch is a word!)

F. Have Faith

G. Set a Goal , even if it seems small

H. Hugs! Everybody needs them!

I.  Sometimes we need, Isolation 

J. Rid yourself of Junk

K. Keep Kindness as a philosophy

L. Laugh long, laugh often!

M. Medications

N. No

O. Okay

P. Perfection ~ Not going to happen 

Q. Question everything!

R. Research. Research. Research

S. Sorry …..You don’t have to apologize for being sick!

T. Talk….. talk to those around you about what’s going on.

U. Ultraviolet protection

V. Vascular involvement ~ It’s a thing.

We’re all the way down to the letter “W” .  To me in this disease, the letter “W” has always stood for “Winning”. Now that might seem like an odd thing for someone with several horrible chronic illnesses to use to for that letter. I know some people would say, “Winning? How in the world are you winning?”  .  And on the face of it, it seems counter-intuitive. But bear with me, and I’ll explain.  Because of my disease,  I have discovered that I am much stronger than I ever knew.  I have found out that people as a whole, really DO care about other people. (I mean, of course , you get the people who are jerks, but that’s really THEIR problem, not mine.) I have  learned to be much more compassionate , to people who are struggling. (It makes you see the entire world through the lens of , “What might these people be dealing with , on a daily basis?”) I have realized that we ALL need other people, that no one should have to go through their life, feeling alone. I discovered so many things about myself, and the people I travel through this world with, at a very early age.



So to me, that IS winning. No, I didn’t win the genetic lottery, obviously.  But it doesn’t mean I can’t make a winning hand with the cards I was dealt in my genetic stack.  I will keep playing the cards I have, and keep on “refusing to lose”.

I hope you  too, can find at least one thing, that you feel like you have won at, despite everything.

And if I haven’t said it today,  I LOVE YOU!! with all my ❤ and 🙂 and as always ((HUGS)) ~ Ruby J.


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