About Me~, chronic illness, humor, Uncategorized, Writing

Soak up the Sun…..(or maybe not.)

It’s the weekend! WhootWhoot! I hope you are enjoying yours so far.  Mine shall be mostly under the radar , I think. A trip to the grocery store, maybe. That’s about as crazy as I get these days  🙂  We are coming to the end of our ” 26 Days ” Series . We have 5 letters left! It’s been a pleasure sharing all of my experiences with you, and I hope it has been some help for you. So far our list has been………

A: Acknowledge and Accept

B: Breathe.

C. Find  Comfort

D. Get a Doctor or team of them you can trust

E. Exercise ~ even if it’s just a scoonch ( Hey ! Scoonch is a word!)

F. Have Faith

G. Set a Goal , even if it seems small

H. Hugs! Everybody needs them!

I.  Sometimes we need, Isolation 

J. Rid yourself of Junk

K. Keep Kindness as a philosophy

L. Laugh long, laugh often!

M. Medications

N. No

O. Okay

P. Perfection ~ Not going to happen 

Q. Question everything!

R. Research. Research. Research

S. Sorry …..You don’t have to apologize for being sick!

T. Talk….. talk to those around you about what’s going on.

That brings us to “U”  .  “U” is a very unusual letter when you think about it. If someone asks you to come up with a word that starts with it, you probably have to think for a few minutes.  But in fighting  lupus , believe it or not , there is a word that starts with the letter U that they warn us of right off the bat. And that is Ultraviolet rays. Any rheumatologist worth their salt will tell you either at your first appointment, or very soon thereafter, “Try to avoid the sun. ” “If you DO go out, wear long sleeves.”  “Get a good UV blocker and apply it generously. ”

I generally explain it to people as , “I’m basically a vampire. ‘AAAARRRRGH!!! The hideous light of the DayStar!!!!’  ))makes shrieking noiseswhilemeltingintothefloor((( that type thing”  .  They usually get the gist of it , when I explain it that way. And it’s basically true.

The sun can cause your autoimmunity to kick off, making your body attack itself. So sunscreen is your friend.


I really like this one , for everyday. It’s light, but still provides 21SPF.


You can also buy sunblocking clothing; long sleeve shirts, hats , light jackets , etc.

Solumbra offers tons of choices in these areas


However you go about it, just make sure you protect yourself. The sun can cause your rashes, incidence of skin lesions, and other not-so-fun things to increase. Not to mention the fatigue that it can bring.

There are, a few things along the way that I have noticed about this.

One benefit of it I have noticed is, my skin is in great shape. Loads of sunscreen wearing, no sun -worshiping , has kept me wrinkle -free.

But there is a serious downside. I am , and probably forever will be, deficient in Vitamin D. I have to take loads of it , to keep my numbers up. This is definitely something that your doctors should keep checked, as well.

So there you have some of the long and short of sun protection. Do your own looking into what works for your skin type. What you like as a style, and what keeps you healthy.

Oh, and if I haven’t said it today…..I love you!! with all my ❤ and 🙂 and as always ((HUGS)) ~ Ruby J.


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