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Box-Holders ~

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Dear  political  candidates,

I  would  like  to  take  this  time  to  express  my  sincere  thanks  for  all   the political  flyers  , postcards,  pamphlets  and  papers  that  you  have  so graciously  inundated  my  mailbox  with  at  this  particular  time  of  year.  We  receive  at  least   four  or  five  pieces  of  said  mail  each  day.   They  are   compact ,  and  concise  and  state  your  views  so  that  we  know  where  you  stand.  They are  very  handy.  See,  we  are  a small , backwoods  family,  that  burns wood  in  the  winter.  These   flyers  make  excellent  kindling.  We  can  just roll  them  up  , keep  them  in  our  stove -side basket  and voila’ , instant flames for our toasty wood heater.  So  in  conclusion  , just   keep  sending  us  those  precious  flyers , and  postcards ,  with  the promises  on them that you don’t intend  to keep.  It’s  so much fun  watching them  go   up   in  smoke  .

Sincerely  ,

 Ruby Jeanette    

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Like I Haven’t Heard THAT ONE Before~ “You Don’t LOOK Sick!”

This is me. I like like poetry, writing it, reading it, hearing Robert Burns read in Gaelic style. I’m not going to tell you my age , if you know me well enough to have read my blog, or just know me well enough, then you know how old I am. I have black hair, and green eyes. 10603462_729906193748723_4065940491525995201_n 10411255_729906263748716_5728919877270098224_n 10625102_729906277082048_4005102635514899624_n

So here in this picture you might make all kinds of assumptions. She looks young , vibrant and healthy. She looks like she enjoys spending lots of time outdoors, and is fairly active. She looks good. But here are some more pictures of me.

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This is what I look like too. I have systemic lupus erethemetous. I also have complete heart failure, nervous system damage, seizures. Raynaud’s phenomenon ( a circulatory problem that causes your extremities to turn blue, purple or even black with cold) , Sjogren’s ( an auto immune condition that causes extreme dryness in your joints, and other areas such as your mouth , eyes and soft tissues.)  , and also POTs. Postural Orthostatic Tachycardia Syndrome a rare heart condition caused by my lupus damaging my nerves in my heart. I get adrenaline overload almost constantly from these, and so my heart rate runs a constant 125 sitting still , if I attempt to move or do any activity it will shoot up closer to the 200 bpm mark. I only have 30% function of my heart, and have such extreme allergies that just the very smell of certain things can cause me to have an extreme reaction . So WHY did I show you these? Because I want you to know what a person with lupus REALLY looks like. To know that we deal with excruciating pain on a daily basis, but still manage to look that first set of pictures. We don’t want your sympathy. We want your compassion and understanding. We want you to know that people DON’T take us seriously BECAUSE we DON’T look sick. We’re warriors every day . Our bodies are the enemy, and the weapons the doctors have given us are very limited. What we have is fatal. Yes, I said fatal. There is NO cure for lupus. It is the zombie of the disease world, eating us from the inside out. And yet, we still manage to get up, smile, walk on, love our families, and still hold joy for life, however short it is.  So maybe that’s why we choose to make sure that people see us this way, and why we hear SO often that dreaded phrase, “But you don’t LOOK sick!!”

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Poetry, Writing

What Lies Beneath~

Original Poem ~ Ruby Jeanette Woods

Whatliesbeneath

Who am I really?

Lover , sinner , saint?

The outward faces that we show,

are only coats of paint.

Everyone goes about  the expected way,

and plays their little games,

never realizing , that they all spread the pain.

The ones we thought that loved us best,

tell the most vicious lies.

And all the time they hide behind

a mask of perfect smiles.

A world full of glossies , and whitened bright veneers

passing by those they deem less worthy,

and causing them to fear.

Left with wondering what we did,

to make them feel such disdain?

People we once trusted,

now just  turn the other way.

False friends , and broken vessels,

is all there is to say.

Whited sepulchers on the outside,

inside death and decay.