No Make-up Necessary~

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(Today is Restful Wednesday! Or Nap Day. 🙂 No dressing up, or application of make-up required. I have decided that on Wednesdays I am going to have a day just to rest. I will do my blog posting and FaceBook early if possible, and not worry about anything but rest, at least for Wednesdays. Because,I have decided that my health is like that L’Oreal commercial, it’s worth it! If you are tired, this is a public event, so get your favorite jammies and join in. Find your special spot on the sofa, and let’s just take care of ourselves for one day! )

Fatigue. It is probably THE hardest symptom of lupus to explain to people. Yes, I know , everyone gets tired. We’ve all had those days where we felt like we just couldn’t roll out of bed. And sure, we’ve all had those days where we COULD roll out of bed, and just didn’t WANT to…….:) But what my non-lupie (those without lupus) friends don’t “get” is that the fatigue of this disease is SO much more severe than anything they can imagine. I know that might sound harsh, and you can say I’m exaggerating if you want, or being dramatic, but it’s the truth. There’s nothing like it. The only way I know how to explain it to those who care enough to ask, is to say , Imagine the worst case of flu you ever had. Remember how tired having the flu makes you feel. How just making it from the bed to the sofa in the living room is so exhausting you think you might have to call the ambulance. Got that flu feeling/memory in your mind? Alright. Now. Imagine that it NEVER goes away. That every day when you wake up this is the first feeling to hit your body. That no matter how much you slept the night before , you are still NOT rested when you get up. But stuff still has to be done doesn’t it? Housework, taking the kids to their activities, being a functioning human being….etc…. When you have the flu , it just lasts maybe a week tops, and people understand. They’re sympathetic. “Oh, you poor baby. The flu is so awful!” But , when this becomes your life, people are a lot less understanding, let me tell you. They really start to get that whole, “Well, we’re ALL tired!” attitude with you. “Suck it up.” I’m not complaining, really. I know there are people who are never going to understand. These folks are never going to “get” it , so to speak. But, I just wanted to write, and let everyone know. The next time someone with lupus says , “I am exhausted!” or they make their joke / not a joke about needing a day just for naps, you might picture a flu day in your mind, and understand maybe a little bit better…. There’s also an awesome story in the lupus community called “The Spoon Theory” that I sometimes give people to read when they really WANT to understand…….it explains it so well, you can read it here……..http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/

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