About Me~

Days 12 and 13~

Well, my FB page has not let me post anything for the last two days. Don’t know if it’s my deal or theirs. I’m running a series on my Lupus page, called 31 days ~ and ways to help lupus suck less. Yesterday would have been day 12 and today is day 13. So I’m going to try to write it here, and then post it there, and see if I can get around it that way. So , anywho. For yesterday Day 12~ We are all suffering from a terminal illness. From the moment we are born , we are all heading slowly towards the grave. Some of us might live to be 100, and some of us might die tomorrow. Is that fair? I don’t know. I don’t think we were ever promised “fair”. All we are promised is now. Right now, this moment. To breathe, to love , to spend with those we care about. So today’s word is LIVE. Right this minute. Don’t put it off. Don’t wait until tomorrow to tell that person “I love you”, “Thank you!” or “You mean so much to me!”. If having a chronic illness has taught me anything positive, it is this. Right now is all we have. Make it count.
For today Day 13~ Ugh. Can’t live with them. Can’t live without them. Sometimes they make you feel great, and sometimes they make you want to scream. Today’s word starts with “M”. What? Men? Noooooooo! 😉 Medications! I know , I know. Bad joke. (But it was funny, right?) I know that I have to take medications. It does not make me like the fact any better though. I HATE taking pills. I HATE IT. I don’t like feeling like I “need” anything. But it is what it is. Let’s face it. Even 50 years ago, the outlook for people with lupus was not great. Medicine has come a long way in keeping us above ground. It’d be great if we could go even further with today’s technologies and find a forever cure. That’ s what we’re all rooting for. But until that day comes, I am going to try to be a good girl and take my meds. ((HUGS))

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About Me~

Your Thoughts , Please~

I am thinking of writing a “book” of sorts. Kind of a handy guide to having lupus, tips and things I have learned over the nearly 15 years that I have had this disease. I am sharing some of the tips on my LUPUS sucks! FB page right now, calling it 31 days ~ and ways to help lupus suck less. I am new to the whole digital thing, as far as I don’t know how a lot of this stuff works. I haven’t done a ton of research yet, on e-books or self -publishing or things of that nature. So , I guess my question is , if it were reasonably priced , say at .99 cents or something , would anyone want to read it? I don’t know that I’m all that great of a writer, but I do know there are a lot of people with lupus, and auto immune diseases who ,just having been diagnosed could maybe benefit from some things I might say. I have never claimed to be a motivational speaker, or even an expert on lupus, but I have found some things that worked for me that I could share. So bottom line……what are your thoughts? Give me a shout. Worth the trouble, or not? I look forward to hearing your opinions! ((HUGS))
P.S. On the side of this page is the link for my FB page so you can get an idea of what I ‘m talking about! 🙂

About Me~

For the Birds~

Am I the only person who doesn’t “get” the Angry Birds game? Can someone please explain to me why the game is supposedly so “addictive” and “fun” ? I got the app for my tablet, and my boys think it’s the best thing since sliced bananas. They also got Angry Birds Space, and the Seasons version. They were unable to explain WHY they liked it so much, other than it’s fun. I was totally bored with it in about ten seconds. What really drove me crazy was waiting for the little blocks to fall, or the pigs or whatever to finish falling off the buildings . It really made me think of PONG. Remember waiting for your “ball” to get to the other player? BLOOOOOOOP. blooooooop. BLOOOOOOOOOOOOOOP. Like molasses in January. Maybe I am too ADD to play video games, and that is why they don’t appeal to me. I don’t know. Or maybe I’m just weird. 🙂 Thoughts? No, no. Maybe I really don’t want to know!

About Me~

The Lord of the READS~

I’ve come to a serious conclusion. I have an addiction. Isn’t that the first step to getting help? Admitting you have a problem? My mom bought me a tablet. And I’ve discovered Kindle. A lot of the books are free! Did you know that? FREE!?! I had said once that I thought I would never get an e-reader because it seemed like treachery towards my love of the written word on paper. The smell of the paper, the feel of it. But there were so many books on there to choose from! And they’re FREE!!! And the little gadget just downloads them so fast. You look, click, and BADA -BING. It’s right there in the palm of your hand. And it will hold so many ! I have 285 books on mine already. Do you have any idea what that’s like? Of course, it also gets games like Angry Birds , which my kids think is just the best thing ever. I’m ashamed to say though, I’m kind of stingy with it. I mean it’s got my books on it! I get the feeling I kind of look like Gollum when they ask if they can borrow it. “My Preciouuussssssss! Mine!! They stole it from meeeeee…….”
But in all seriousness, the tablet’s nice to have when you’re in the hospital, or the doctor’s office. It beats having to lug 3 or 4 hardback books around, although I will never be able to give up my love of a big thick book. A tablet can’t quite match the feel of that!

About Me~

Christmas in October?!?~

I had to run to the local Dollar Store yesterday to get a few things, and I couldn’t believe it! They already have all their Christmas stuff out! Seriously? I can remember growing up that Christmas stuff didn’t get displayed on the shelves until at least after Halloween. One of these days I guess they’ll just start leaving it out in a special section of the store all year. Maybe I’m alone in feeling this way, but when you see it for 3 straight months, you just get sick of it. And I really LIKE Christmas. But somehow seeing jack o lanterns and Christmas trees in the same aisle is just a little creepy to me .Kind of like that Tim Burton movie, The Nightmare Before Christmas. I suppose it’s good if you want to get all your shopping done super early, but I’m never that prepared. I don’t know why it weirds me out, it just does. It’s almost as if it takes some of the specialness out of it or something. So, I admit , this was a totally random post, but just felt like I had to say something about it. Am I the only one who feels this way, or does someone else think it’s strange ? Give me a holler! 🙂